What a blinder of a week… to say it’s been refreshing is understatement following our week in hospital. George was allowed home on Thursday just gone as he was able to eat a little more, drink and his temperature hadn’t crept up. He has gradually become more energetic, his appetite is well and truly back and he’s functioning like a normal three year old (apart from walking and moving like a little old man). It’s been so heart warming and we’ve appreciated every single minute of it.
The garden is just about finished… there’s just some work where the BBQ is going to be that needs finishing, there are some lights to go in and we need to attach a few more of the kid’s things to walls etc. We’ve had a lovely few days in it since the weather has been glorious and have had the awning out too to protect George from the sun while his skin is more sensitive on chemotherapy.
I managed to take Oliver and Harriet swimming towards the back end of the week last week, we had lunch out and they’ve played out in the sunshine with friends. Oliver even had a sleepover at his mates on Friday night, much to his delight.
George is really enjoying pretending to be a fireman with the garden hose – this is a novelty as we never used to have an outside tap. He’s given the flowers a “drink of water” at least twice a day, luckily they’ve needed it!
We’ve had Finly from next door round for a play and our friends came round for a sneaky peak and a glass of wine or two with their children on Saturday night. It was great to get out there with somewhere to sit and somewhere safe and clean for the kids to play.
Sunday we had more relaxing in the garden and then a BBQ at our neighbours. George had a ball playing with his friend Casey.
Harriet and her friend Kerry have decided they wanted to do something for George and for little girls suffering from the effects of chemotherapy by going for the chop and donating their hair to The Little Princess Trust. Myself and Kerry’s mummy Zoe are very proud of the girls for such a selfless act at a young age. If you’d like to support them you can do via this link. We’ve actually had a few more recruits from the children’s school now hoping join in the big chop! Thank you for being so thoughtful too Grace and Olivia (Wilson) – There will be another post to follow on the big day for all of the girls xx
We’ve been over to Alder Hey this morning for his bloods to be taken to see how we’re looking for his treatment continuing this week. We had everything crossed as we didn’t want it delayed and further and just wanted him to be well enough, he seemed it on the outside anyway!
So at 4pm we got the call saying everything great for treatment to continue, his neutrophils are 4.1 up from 0.4 which is a great recovery (that’s his white blood cells that fight infection) and his platelets are over 600.. they are his clotting cells and the lady on the phone said he has so much he could share some out!
We’re good to go, this Wednesday he’ll head in for 10am for his longest period on a drip for treatment so far – five and a half hours of chemotherapy and fluids. We’re anticipating side-effects, I just hope that whatever they are, they’re not as painful as last weeks.
Following this treatment he’ll have a nurse coming to us at home for 4 consecutive days a week to administer more treatment through “Barry”.
Feeling a bit apprehensive for what lies ahead but glad this week is going ahead now, even if the side effects are potentially going to clash with his birthday next week 🙁 we’ll see though, he might surprise us.