Leukaemia | Twelve months on | Back to work | child receiving chemotherapy

Sorry for the harsh titles of these blogs sometimes! I’m trying to use keywords so that other families with children with cancer can find us on Google if they’re looking for positive stories.

Latest hospital visit

We’re due an update as it’s been a while hasn’t it.  It’s been quiet as I’ve been a busy little bee and George’s is on top form considering, so we’ve not been in hospital for sickness, just routine appointments – go George!

We went into Oncology at Alder Hey earlier this week after school for George to have bloods taken which were then discussed at his appointment on Wednesday.  Barry (the port) was given a flush to prevent him clotting up, which was a good reflection of how well George has been – it’s usually accessed more regularly because he falls ill before it ever needs flushing.

The doctor mentioned this week that George’s neutrophils are quite high at the moment.  The average Joe’s neutrophils sit between 4 and 11 but George’s need to be around 1 so that the doctors know his bone marrow is suppressed.  His neuts are 3.8 right now so it’s a sign his bone marrow has started fighting something off (any virus or infection), or he needs his chemo dosage increasing.  We’ve got another two weeks to see what the next move is.

The vegetarian

Sugar the puppy has had her fur trimmed
No pictures of the kids, just the dog’s hair cut

What else is new… Sugar has had a hair cut…. oh and Harriet’s a vegetarian!  that news has come as no surprise to a few of my friends.  One day she just refused to eat “an actual chicken’s leg!?” as she put it.  She’s never had an issue with meat until now… now she’s guilt tripping us all over eating defenceless animals.  In her words “it’s like eating Sugar” – our pet dog.  I get her point.  To be fair to her, I admire the fact she’s made the choice herself, no one she knows is a veggie, she’s doing it purely because of how she feels.  She knows her own mind this one.

Giving up work whilst George received treatment

As you all know, I stopped teaching my antenatal classes a few weeks after George’s diagnosis.  This decision didn’t come easy, but it was the only way forward.  The classes could be quite emotionally demanding and I got to the point where I felt my ladies weren’t getting the best of me anymore.  Obviously they all thought I was completely mad still teaching whilst George had just been diagnosed with leukaemia…. maybe I was!   I just thought it might help to keep in a positive place.

Anyway, no regrets on that front, I was released from a restrictive contract and free from the monthly payments to the franchise.  I could relax and look after my children when they needed me the most.  It was during those periods when George was an inpatient, and we were juggling Oliver and Harriet too, I couldn’t imagine being in a place where I could consider working again – and I’d previously only worked 12 hours a week tops!.

Ready to get back to work whilst treatment continues

Twelve months or so later and I know that I’m ready to get back in the game….not ‘on’ the game… those days are behind me 😉  There’s approximately 2 and a half years of daily chemotherapy and theatre for spinal chemo every few months but now we have our routines in place, I feel like there’s a little opening for me to get some of myself back.  School are now well versed on what they’re looking out for, we know which friends we can rely on if we’re rushing to hospital and we understand the drill once we’re there.

Lisa Rooza stood at Hypnobirthing training
Proper Geek at the Hypnobirthing training

We all know I love a good chat, I also enjoy helping other people and given my 4 years experience working with pregnant ladies, things are pointing in the same direction.  I have had a chat with my friends in the local maternity services and the birthy world and found out that, you know what?  I can do something birthy myself!  I’m a qualified complementary therapist, and have now trained in a method of delivering antenatal workshops called Hypnobirthing.  I have now set up my own birth programme and called it Birth Geek.

Birth Geek

I have lots of ideas for Birth Geek, but for now am not going to bite off more than I can chew.  I’m running antenatal workshops on a Sunday in Warrington, Lymm and Knutsford and offering mobile pregnancy massage a few days a week while the children are in school.  I’ve loved getting my teeth into designing my own website… and final branding is almost there, do take a look.

Not lost the plot yet….

We rise by lifting others quote
that we do….

And so a new chapter is beginning, one I never envisaged even 6 months ago – working whilst my child is receiving treatment for cancer!? but look, anything’s possible.  I’m just going to keep mindful of keeping a good balance.  Given I’ve not been sectioned so far, something is obviously working for us!  Celebrating every small achievement, every milestone, taking nothing for granted and living life to the full is not about to change.

Lis x

A 400 mile bike ride for George, fattening him up and chicken pox alert

4 guys 400 miles
4 guys 400 miles

The support for our family is still going strong this week!  A team of the kindest (craziest!?) guys are spending three days cycling 400 miles to support a charity that hope to send our family to Lapland to visit Santa.

Rays of Sunshine grant wishes for youngsters suffering serious or life-limiting illnesses and have agreed to grant George a wish in the future to meet the real Father Christmas!  Paul Wilson, Gary Cook, Rick Wright and Neil Stokes are setting off this Thursday along with their service driver, Lee Paterson and donating all funds raised to Rays of Sunshine.

The guys have spent the last few months training and raising funds to give to the charity, through injuries and illnesses themselves.  I’m still finding it hard to accept everything people are willing to do for us!?  We’re very proud of all them, as I’m sure their families are too.

Their efforts have also been featured in the Warrington Guardian and for those who also want to donate, you can visit their JustGiving page here.  Unfortunately we won’t be visiting Santa this Christmas, as George’s journey through this only began in January this year.  However with at least 3 and a half years of chemotherapy everything that goes with it in the treatment for leukaemia ahead of George, we will hopefully get to accept his wish in the near future.

We feel so lucky to be part of such a supportive community with selfless, caring people wanting to support us through every step of the way.  Thank you so much to everyone involved and to all those have been by our sides since this all began.

Tomorrow is the next blood test, consultant appointment and chemo adjustment if necessary at Alder Hey for George.  It flies around doesn’t it!  We’re hoping for a weight gain as George’s doctor was concerned with how much he’d lost over the last few weeks.  He’s been stuffing his face this week though so I’d be surprised if he has lost any more.

We’re on chicken pox alert at school at the moment as another little one has come out with them, they’re not in George’s class but their sibling is, who hasn’t had them before either.  The parents and the school have been fabulous and were well on the ball with it, informing me so that I could liaise with the hospital.  The little boy’s Mummy even kept him off school worrying about George, when her son isn’t actually showing symptoms…. just another example of how caring people are.   Following a chat with 3B Daycare at Alder Hey we were told that, at this stage, as long as George hasn’t had direct contact with a child with chicken pox, then we should all carry on as normal.  At the end of the day chicken pox has a long incubation period of 7 – 21 days and everyone can’t start keeping their children off, nor should we keep George off as it could go on forever!

Chicken pox for a child with leukaemia can be serious due to being imuno-compromised whilst on chemotherapy.  However, as long as we’re aware when it’s knocking about, we can keep an eye out for symptoms in George.  George isn’t immune to chicken pox as he’s never had them and being in school, there’s a pretty good chance he’ll get them at some point.  At the moment, if he came into contact with someone carrying them he’d have antibiotics to help him at home, then if he contracted them he’d be in hospital for around a week to be monitored and given medication.  This is a risk we take with him being in school but are confident that it’s better for his all round well being, to be in a school environment, having the chance to develop friendships and grow up with his peers.  At this point everyone around him is so well informed and attentive, we’re confident he’s in the right place.

Stroll around Rixton Clay Pits
Stroll around Rixton Clay Pits

So, if you follow us on the old social media, we’ve not had too bad a few weeks with some nice Autumnal walks with Sugar, viewing high schools for Oliver (argh!?) and cosy nights in with the kids.  We have tomorrow’s hospital trip to get out of the way tomorrow hopefully with some positive news, then it’s Oliver’s 11th Birthday on Thursday as well as the lads starting their 400 mile ride.  I’ll follow up the blog with news from tomorrow when I can, and if you don’t already follow us elsewhere then you can do on Facebook hereon Twitter or Instagram get on it! Sometimes it’s easier to share a quick photo or note of how we are at hospital than write War & Peace on here 🙂

Good luck to Paul, Gary, Neil and Rick! Don’t get too saddle-sore, thanks to Lee for being their service car driver, just as important for it all to happen, keep safe guys! x

The Familymoon in all its glory

First day at St Ives Bay
First day at St Ives Bay

The few weeks following becoming Mr and Mrs Rooza have become one of our all time favourite memories.  We’d organised two weeks “Familymoon” in Cornwall with George’s consultant haematologist’s permission.  This wasn’t something i’d ever envisaged being able to do during his intense treatment.

We usually camp but decided we’d make life a little easier not having pitch a tent etc by staying in a caravan.  We’d stayed at St Ives Bay Holiday Park last year with all our friends so knew it had everything we wanted plus this time, a sea view to wake up to in the morning.

View from our caravan
View from our caravan

We packed all of George’s chemotherapy and pain relief, high factor sun cream (you can have this prescribed by the Oncology department for anyone who may find that useful), we knew where the nearest paediatric unit was and then where the nearest Oncology unit was too.

Choosing to have “Barry”, the port under the skin, was proving it’s worth as we didn’t have to worry about keeping a line clean, away from sand, sea etc.  George was able to enjoy the beach as much as his brother and sister, we’re still finding sand in his ears now to prove it.  Another thing that was also really helpful was our pop up beach shelter, twenty quid of Amazon.  Sometimes all the running around would be just too much, so it was great for George to be able to crash out of the sun (or typically for the UK, was perfect to get under when it rained!).

The dune of doom
The dune of doom

Hayle Beach was as beautiful as we remembered, the kids enjoyed boarding down the dunes, building sandcastles and paddling in the shallows.  Picnics on the beach each day made saved us a fortune and a couple of beers whilst we were down there made the honeymoon with 3 kids a little more relaxing!

Oliver is less of a paddling in the shallows man, and more of a bodyboarding in the waves kind of guy.  Damien and Oliver boarded most days whilst I watched excitedly…. or maybe I sunbathed….

Oliver bodyboarding
Oliver bodyboarding

Obviously it poured down on a couple of days, we had to be reminded that this was not the Mediterranean cruise we booked.  Being surrounded by sunburnt Northerners wasn’t enough no, some classic Warrington rain was sent our way as a cursory reminder to appreciate the sunny days.

 

Harriet and "Catherine"
Harriet and “Catherine”

What we saved on eating sandy butties on the beach each day, we basically paid the arcades’ overheads for them to remain open until next season.  Harriet spent about fifteen quid “winning” her Catherine and Claire teddies which I suspect had been in the site’s gift shop since the names Catherine and Claire were trendy for young children.  Oliver spent most of his time being a lurker, waiting for some poor kid is robbed of their last 2p at the 2p machine… only to jump straight on and make a killing – and what shall we do with 48p’s worth of 2p’s? let’s put them all back in again!  Georgie was happy squirting water at duckies or just blatantly buying sweets with his spends and gorging on them.

 

Paradise Park
Paradise Park

On another grim weather day we donned our cagoules and hit the local bird of prey sanctuary, Paradise Park, and was pleasantly surprised.  It helps that Harriet absolutely loves birds.  We avoided taking George into the aviary where Oliver and Harriet fed little parakeet thingies, not only because it’s like a scene from “The Birds” and he’d probably freak out but just in case there was anything that would make him ill.  The kids met penguins, owls and there were even flamingos walking about – beats the seagulls as big as dogs that we were used to back at the campsite!

Kite flying
Kite flying

The children flew kites and the big boys enjoyed the surf on the very windy days.  Harriet would run like a maniac in the wind and George and I would cuddle up and appreciate our windbreak and beach tent.

We changed it up with some rock pooling at Godrevy on the first week, it wasn’t as successful as last year but just as much of an adventure.

Rockpooling
Rockpooling

Oliver and Harriet liked running around the rocks and coves while the tide was out and splashing in the clear pools while George would sit with his little net in a rockpool “fishing” like a gnome.  Some standard wave jumping as the tide came back in violently before we did the five minute drive back to our site for some tea.

One beautiful evening we walked up to the top of the dunes to watch the sunset with a picnic blanket and a bottle of champagne and glasses.  The sky was perfect, it was lovely and still and the ocean was calm.  We opened the bottle, let out a little cheer, sipped the froth from the chilled bubbly then promptly had to help Harriet squat in bushes while she went for a p*ss.  The kids ran around kicking sand at us, George screamed when he didn’t get his own way and Oliver went missing.  You can imagine…. but of course we smiled for the camera anyway and pretended it was hours of romantic bliss rather than the 7 minutes approx.

 

It wasn’t quite a Royal Carribean Cruise but we did manage to book ourselves on a Mermaid Pleasure Trip in Penzance.  The skipper was lovely, he let the children drive the boat, they pulled lobster pots, we saw seals at Seal Cove and got to see St Michaels Mount from the water.  What made the day extra special though was the small pod of dolphins that came swimming along side us… The guys on board put a device under the water with a speaker which allowed to listen to the sounds of the dolphins communicating, it was so special and absolutely made our day.

The skipper chatted to George and found out his love of the emergency services.  He kindly arranged for us to visit RNLI Penlee Lifeboat station in Newlyn a few days later for us to go aboard their Ivan Ellen lifeboat.  Coxwain Patch Harvey, was lovely, taking time to chat to the children about the boat, how it rights itself in 3 seconds if it ever overturns!? showing us the engine room and letting the children sit up at the bridge… it was humbling to learn how many of the local fishermen and people in the community run the lifeboat station voluntarily!? and are on call night and day in shifts… what amazing guys taking time out to help people, risking their own lives, so selfless.

We crabbed in Penzance too but spent most of our time seagull dodging and came away stinking of the bait.  Kids enjoyed catching seaweed though!

The second week of our holiday got even better when our good friends arrived with their children!  not only was it fresh faces for the kids to play with but there’s only so much of my crap Damo can listen to.  The kids were so happy to see each other and it was nice to have a wine buddy for after we’d hit the waves 🙂

There was more dune surfing, fits of laughter, beautiful sunsets, shooting stars and a day trip to Falmouth where we got to see the Red Arrows display! George spent most of it with his hands over his ears as usual.

The holiday was perfect and just what we needed, with the comfort of still being in the UK for George’s sake but still magical and memorable.

This evening George is in hospital with Daddy being checked as he’s spiked a temp for a second time since we’ve been back.  We’ve been in for a consultant appointment twice too to have his chemotherapy altered as his white blood count isn’t recovering quite as fast as we’d like.  The doctors aren’t concerned and feel he has a lingering virus (he’s had a bad cough for 3 weeks now) so have reduced his chemo to allow his own body to work it’s magic.

Georges wisps of hair
Georges wisps of hair

George’s next consultant appointment is on his first week at big boys school! I can’t believe we’re at this point already, it was something I couldn’t even compute not so long ago. His first day is going to be particularly poignant in this house, I’m sad he’s not going to be my little buddy at home any more, I’m worried for him like all the other parent’s will be for their babies… but he shouldn’t be having to undergo treatment for cancer, it’s not fair.

We’re hoping the next few years of maintenance will be kind to George and that we can continue to have more happy times as a family than difficult ones.  We’re made up we got out 2 weeks familymoon and for now we’re enjoying the last days of the holidays at home together around hospital trips and preparing for all three children going to school… looks like George might even have some wisps of hair for his first day too!

xx

 

Happy Harriet, Great Manchester Run and Georgie feeling blue

Well chuffed with her animal rubbers
Well chuffed with her animal rubbers

Myself and Harriet got out for the day for some much needed girly-time on Saturday.  We both had a lovely time and Harriet chose few little treats and spent some of her own pennies on stickers and paper.

Jenerics and their Georgie banner
Jenerics and their Georgie banner

We went into Warrington Town Centre to the “Around the World in 80 Traders” event to support Jenirics and have a cheeky Chinese lunch – delish!  We saw a familiar little smiling face on the stand on a banner – our Georgie.  It was a shame the rain poured but it wouldn’t feel like home without the torrential downpours would it?  Thank you so much to the Jenirics team for your support, you are an amazing family.

It was funny at the face painting lady, Harriet deciding what she’d like to be….a princess? a butterfly? a bunny rabbit? flowers with sparkles?  No.  A penguin.  I’m not sure the lady gets many requests for penguins.  Typical Harriet.

Penguin on a bucking bronco
Penguin on a bucking bronco

So painted as a penguin she rode the bucking bronco like you do.  We enjoyed watching some outdoor theatre and had a look round town for a new dress….realising our freshly painted penguin probably shouldn’t be trying pretty dresses on, we started to head home.

The penguin enjoying the rocky road
The penguin enjoying the rocky road

I remembered that a friend of ours has just opened their new little art cafe near home so just had to stop off for a milkshake and a decent coffee.  R’Teapot is a gorgeous little hideaway on Bruche Heath Gardens serving the best rocky road I have ever tasted!! i’m talking turkish delight and everything.  It’s cosy and welcoming and we’re looking forward to spending more time there over the coming weeks with friends.  Congratulations Nat and family for creating such a gem and following your dreams x

It was nice to get out away from home for some time my little girl, we both needed it.

Later on, Harriet and I “popped round” to one of our neighbours for a catch up and for Harriet to run amok with the kids.  I did my usual when I start telling a story and leave the house hours later having not even reached the conclusion!  Thank you for hosting Andrea and for the vino, the laughter was great medicine 🙂

Our runners Shannon and Nikki
Our runners Shannon and Nikki

On Sunday I went to watch my baby sister Shannon, and my lovely friend Nikki, take part in the Great Manchester Run.   They were both raising funds for our family and for charities that have helped us since George’s leukaemia diagnosis in January.  They both ran through the torrentials to an emotional finish where we were waiting for a big hug and then went for an obligatory cocktail in a nearby bar.  They’ve inspired me to do the run next year… I better get training!

Gollum
Gollum

I felt like i’ve hardly been at home this weekend, hats off to Daddy for sorting all three kids yesterday while I had a day off.  With being out and about and everything going on, I was shocked last night by the amount of hair George has now lost.  He’s gone from “Hitler” to “undercut” to “Gollum” to “toupee in a side wind” in the space of 48 hours.

The hair loss doesn’t mean he is getting more sick or anything, in fact he’s got less of the awful disease now than when he had a full head of hair at diagnosis… I think it just constantly reminds me what he’s going through when I look at him, so it has bothered me more than I expected.  The only thing that seems to be upsetting him about it is the fact that its in his mouth and eyes all the time.  He’s feeling too rough to care what he looks like.

Toupe in a side wind?
Toupe in a side wind? trying some spagetti

Today has been another emotional roller coaster – and it’s probably more me than Georgie.  He hasn’t been constantly crying like Friday, but his mouth ulcers are worse and the steroids are in full effect so is very hungry all the time.  He’s just not himself, he’s carried a mini sausage roll round with him all day that he was desperate to eat but just couldn’t chew 🙁 he’s been very quiet, lethargic and telling me his mouth is hurting.  He’s been on morphine all day and I had to call the community nurse at lunch time to come out because I was worrying about his breathing.  It seemed shallow and he’s got quiet a nasty cough, then I literally thought I had to call an ambulance during one of his coughing fits because he was going blue and seemed like he couldn’t breathe.

He cleared a big mucousy lump and got his breath back and the nurse came not long after.  Luckily my friend Nic was here (delivering an order of sausages for the little man) and Laura had popped round too to see if could manage some noodles.  The nurse did a thorough check, listened in, checked his pulse etc and felt his breathing was fine.  Now I’m questioning my sanity and whether i’m overreacting!

The nurses have said they are going to start making regular visits to check on us and answer any of my questions that I’m currently having to save up until the next hospital visit.  I had felt quite isolated being sent home with George initially, I mean on the medical front.  We can’t take him into a GPs surgery with a load of sick people and Alder Hey, amazing as it is, is a long way away and a very busy place when you have a concern or question.  Once George had started going back to preschool though and he wasn’t suffering too much, I felt ok.  It’s now that we’re in the midst of the intense phase, we need the nurses here, they’re such lovely people too, I instantly relax when they’re around.

The lovely Clare dropped a spag bol off earlier which helped immensely, I haven’t had time to do a food shop and haven’t left George’s side all day to cook anything.  So after a long day at work, Damo came home to a decent meal! I could’t pass it off as my own unfortunately as my trademark ‘burnt’ wasn’t one of the ingredients.  Thanks again Clare x

Smiling Georgie
Smiling Georgie

We had a couple of nice moments when George managed to play with Lego today, he was also very happy to have a snuggle with Daddy when he got home.  I managed to capture some of his smiles – he looks like his normal self with a cheeky grin 🙂

Hopefully we’ll get out to water some of our plants in the garden tomorrow, George loves doing that.  The guys have been here today installing a garden tap and putting the new fence posts and panels in.  It looks ace! Thursday the grass goes down and maybe at weekend we might get the canopy up.  We’re really looking forward to getting out there to enjoy it.

Another few days done, we’re not in hospital this week (fingers crossed!) and are just taking each day as it comes.  Hoping for a some more comfortable days for George x

Alder Hey Oncology – Phase 3 Week 3 of treatment for Acute Lymphoblastic Leukaemia

So after a lovely few weeks off visiting Oncology at Alder Hey, George went to clinic in a great mood. It’s like the weeks off leave him totally refreshed so we’re grateful for the gentle phase of treatment.

Oliver had got off to a bit of a rocky start in the morning when he appeared pastey looking and complaining of stomach pains. NOT what we needed. Given it was only mentioned when it was time to leave for school and not for the whole time he’d played a computer game – off to school I booted him, with some reassurance i’d come and get him if need be and gave the office a heads up.

George had been being nil by mouth since the night before because he was going to theatre. Oliver and Harriet bless them have to eat their breakfasts like Ninjas in order to not get rumbled by Georgie Roo. It was only by the time it was about 1 – 2pm in the day he was starting to say he was hungry so he didn’t do too badly. We don’t torture him, so also don’t eat… which is not the cleverest idea! By 11am i’d already started flagging, the sneaky Actimel i’d necked in the car wasnt cutting it anymore so it was caffeine all the way!

It was great to hear George had put on 100g as they’ve been keeping a close eye on his weight loss. If he drops much further they’ll be thinking of inserting a feeding tube. Bizarrely, I’ve felt like as soon there’s a feeding tube in, he’ll suddenly look ill… and how are we going to get his salamis down it??

George holding playdoh
George made me a cauliflower whilst waiting

We met with George’s Doctor, Helen, who was really surprised to see him get out of his pushchair, playing with a plastic tea set and offering us all a brew and toy cake (the irony). She felt he looked really well and was even more impressed with what looks like a full head of hair! we know he’s lost loads as we keep finding it everywhere (can’t blame the cat all the time) but overall, you don’t look at him and think he’s bald. She said about 1 in 100 children don’t lose their hair but not to get too comfortable as the treatment in the next phase in May is much more aggressive.

That’s another thing George has not quite fell in line with, his bloods at diagnosis weren’t actually showing he had leukaemia like most other children’s. There were only 2 other cases in the whole year last year – he’s a little marvel.

Dr Helen Campbell did say that they are having to take him off his chemotherapy medicine (Mercaptopurine and Methotrexate – the ones we give at home) for a couple of weeks as his blood results are too low. This is all part of normal treatment I believe, they make adjustments based on how his body is responding. They’ll do another blood test and once his bloods recover, he’ll go back on the chemo.

We had a good old chat about the central line and what kind would be best for George. We were torn between the options as one will mean no more needles but it can’t ever get wet (think baths, showers, swimming, paddling in summer) and the other means it’s accessed with a needle but he’d be able to do most things that involve water. After the debate, we went for the port under the skin. We know its the ripping the adhesive tape off, squeezing his arm, the tourniquet, being woken in the middle of the night that’s contributed to the traumatic experiences with cannulas – It’s not necessarily the needle itself.  We chose the Portacath option.

George crossing fingers
George trying to do “fingers crossed” that he’s next!

George needs this central line as the next phase of treatment involves more intravenous medication and regular access to bloods etc. We’re looking forward to getting May and June out of the way.

After hours of going back and liaising with different medical professionals, we found a surgeon available who was available to insert his portacath and give him his spinal chemo too. It just meant we were on an emergency list rather than a scheduled one which meant some more waiting. I ended up leaving the hospital at 2.15pm to head to collect Oliver and Harriet from school… still nil by mouth but wired on caffeine (I did go straight to Subway for all those people who are about to text me).

bag and pink sleeping bag
Bag packed and not forgetting the pink sleeping bag!!

George had been given a pre-med before surgery today for the first time to save the anxiety he had with the anaesthetic mask and it worked a treat! he was flat out for the anaesthetic and went off with no problem. While he was down the nurses told Damo that George was going to have to stay overnight for pain relief – something we hadn’t anticipated, the pain or the overnight stay. So I drove to get the kids, nipped home, packed a bag, grabbed the pink sleeping bag and drove back down the M62 AGAIN.  It feels like I could get to Alder Hey with my eyes shut these days! (not recommended).

Oliver, Harriet and I arrived again and George was still in theatre – the waiting is absolutely awful, i’ll admit. But sadly I needed to get in and out of the place as Oliver was flagging and obviously we don’t want to be passing anything on to all the already poorly children.

We’d got all the way back to Warrington, been for a KFC (couldn’t be arsed cooking) and gone home again and George was STILL in theatre. Poor Daddy 🙁 he was in for about two and a half hours. He was still quite drowsy when he came to and just asked “What’s this?” about

George asleep with dressing on neck
Flat out and high on morphine following portacath insertion

the dressing on his neck and chest. He didn’t mention it again!  he had something to eat and went back to sleep.

Oliver went straight to bed without eating last night with his sick bowl/the mixing bowl and said the “unhealthy food is making me gag”, I’m a great mother aren’t I?

This morning George has just been waiting on having his cannula out, he’d needed it in case he needed a blood transfusion and then he’s ready to go. Daddy just sent me this photo, he looks like a Gallagher – both the Oasis type and the Shameless type.  He assures me he’s not grumpy, just concentrating on the tv.

George in a pushchair
George ready to go home

Mummy is looking forward to cuddles with Georgie this morning and maybe i’ll let Daddy have a little snooze…

Meat munchies

George with a box of 100 peperamis

As part of George’s treatment he’s regularly on steroids – don’t expect pictures of a body building a 3 year old!

 

These are the side effects:

  • Increased energy and wakefulness (i.e. lets stay up ALLLLLLLL night!)
  • Mood swings (I love you mummy… GO AWAY!!!!)
  • Increased risk of infections (This is new to me, good old Google)
  • Increased appetite (No shit.. we’re talking “can I have a ham butty?” at 3am!)
  • Indigestion (as there’s no space left in that tum)

 

George giving a thumbs up whilst eating a Peperami
Thumbs up for salami

George became partial to a continental meat platter here and a box of 50 cocktail sausages there during his last run of steroids.  His absolute favourite though, was a Peperami or three!  So imagine his delight now he’s back on steroids when a box of 100 Peperamis arrived in the post!

One of our lovely thoughtful friends contacted Peperami without us knowing and we received a box full plus a freaky Peperami sausage squidgy toy that shouts aggressively.

It was hilarious bless him, though I did have to ‘put them away’ or his dietician will have a heart attack.

Another lovely act of kindness x