It’s been a long time since I last posted – but take it from me, no news is good news! George’s bloods have maintained really well over the past months with all our hospital visits being routine only. He’s still enjoying going to school and his daily chemo and trips to theatre for spinal chemo are just part of our routine now.
This time last year Make a Wish Foundation confirmed they wanted to grant George a wish. At the time we weren’t ready to accept their offer due to George still receiving very intense chemotherapy and still being too poorly. The lovely volunteers from Make a Wish had come out to our house to chat to George about his wishes which included an ice cream off the ice cream van and to visit the local fire station….! the guys from Make a Wish giggled with us and said they often get this kind of request but really try to make it a once in a lifetime experience for the little ones.
They asked George some questions and through water parks, ice cream, santa, snow, Lego, slides, fire engines and aeroplanes, they came up with three wishes and left to speak to their head office about which one they could make work. Not long after, we received a letter confirming they’d like to send George on an aeroplane to a sunny destination where he can go on water slides and eat ice cream to his hearts content.
It was an emotional time and whilst still facing a few hurdles I don’t think any of us could really imagine being in a position to leave the country. We postponed his wish until 2017 so that we could gauge what life in “maintenance” would be like for us.
And so here we are…. I opened the full itinerary this week from George’s Wish pack and had a little cry – firstly at just how personal and special they’ve made it, and secondly with relief. Relief of how far we’ve come and that he’s so well, we’re actually comfortable with going!
I’ve had to scrape the kids off the ceiling this evening to get them to sleep as we head to Portugal tomorrow morning (if there are any thieves reading this, my house will occupied, I have eyes everywhere and we have a guard cockerpoo who will eat you for her breakfast).
I’ll be honest I’ve had moments of guilt at times, and even considered not sharing our positive news. I felt like we shouldn’t be accepting this at all while George is functioning so well at the moment. But then I look at all his beads of courage, every one of them representing needles, anaesthetic, doses of chemotherapy, port access, hospital stays, steroids, scans, tests and more… groups of colours or shapes of beads that I remember are from the times that I never want to visit again – the ambulance, when the pain relief wasn’t working, when I sat in my living room questioning whether he could breathe properly, feeling scared and isolated and more recently the moment relapse was being investigated…. I can’t even put into words how that really felt. What I can say though is it’s all more than anyone should have to endure in a lifetime, never mind a little boy in the space of a year.
So after all my baby has been through, he deserves this, we all do. His Beads of Courage are going to continue to grow for another couple of years yet – so we’re off to make a little boy’s wish come true – and we will all enjoy every last minute… wouldn’t you?