Just a quick one tonight to let everyone know that last Wednesday’s hospital trip was okay. The blood counts that were concerning us have now really picked up, but to the point that they’re too high so the chemo has been increased hopefully just enough to get the counts to the ideal point.
George bowled us over with his courage and bravery from being nil by mouth, having “Barry” accessed with the gripper to going under general anaesthetic and coming round again without a tear. I’ve got a Vlog to upload of that day which I’ll put up later in the week.
He had his numbing cream on before we left home and wasn’t allowed anything to eat while Oliver and Harriet sat eating their breakfasts. Daddy took George to hospital while I gave Sugar and quick sprint around the park and took Oliver and Harriet to school. I must be honest, I had another wobble on the way to hospital as there was a bloody ambulance on the M62 blue lighting all the way. It took me back to 5th January this year when I had to follow the ambulance with my own son in it to Alder Hey the day before he was diagnosed.
I made it to the hospital just in time for George going into his consultant. It was a relief to hear that his neutrophil count had picked up, they were just higher than the doctor would like this time so the chemo has been increased now to bring them down again. The doctor was a little concerned at George’s weight loss as he’s lost 1.5kg in two weeks, that’s quite a lot for a little person. It’s been put down to the fact that he’s started school and is much more active. I have had a chat with his teacher since to double check he is actually eating his lunch which she assures me he is, he’s a great little eater. The concern will be if he’s lost weight again, although I’m not sure what it means for him if he has… just another waiting game.
So following the clinic meeting with the consultant, we went through the motions that we’re all now prepared for. Karyn, the lovely nurse who has never missed “Barry” with the gripper was on, so that was really straight forward and relaxed. We were called to the theatre waiting room where George watched Toy Story on the TV then blew me a kiss goodbye, and off he went for his sleep and lumbar puncture for spinal chemotherapy. He has this spinal chemo because the oral chemotherapy that we give him at home doesn’t reach the spinal cord and fluid around the brain. Leukaemia cells can travel into the fluid that surrounds the spine and brain, so during the maintenance phase, he has to have this procedure via lumbar puncture every 12 weeks.
After his theatre trip, he was wheeled back up to the ward, staying lay flat as directed for about an hour. He was absolutely ravenous so ate half of my butties before his own picnic arrived along with his special request of chocolate ice cream! The kitchen really look after them.
George had been really looking forward to going to theatre because A. he got to have a sleep and B. he gets a present for being brave. Mummy hadn’t been very organised so he got to choose which Transformer he wanted from his bed on my phone that day. Thank you Amazon Prime, Optimus Prime arrived the next day 🙂
So all is good in the hood at the moment, we’re back at Alder Hey again on 5th October all being well, so we’d better get fattening George up in the meantime!
Georgie was straight back to school on Thursday and on Friday I had another little emotional moment, but for a lovely reason, he came out of school with a Character Award for Courage… for joining in with a dance lesson even though he wasn’t sure he’d like it! Bless him, cracks me up.
Just another quick THANK YOU to our lovely neighbour Laura (not Ian, he can’t be arsed reading the blog..I’ll Vlog another time!), for having Sugar Poo over for doggy play dates with Teddy their sausage dog while we’re at Alder Hey. You’re a star! x