Myself and Harriet got out for the day for some much needed girly-time on Saturday. We both had a lovely time and Harriet chose few little treats and spent some of her own pennies on stickers and paper.
We went into Warrington Town Centre to the “Around the World in 80 Traders” event to support Jenirics and have a cheeky Chinese lunch – delish! We saw a familiar little smiling face on the stand on a banner – our Georgie. It was a shame the rain poured but it wouldn’t feel like home without the torrential downpours would it? Thank you so much to the Jenirics team for your support, you are an amazing family.
It was funny at the face painting lady, Harriet deciding what she’d like to be….a princess? a butterfly? a bunny rabbit? flowers with sparkles? No. A penguin. I’m not sure the lady gets many requests for penguins. Typical Harriet.
So painted as a penguin she rode the bucking bronco like you do. We enjoyed watching some outdoor theatre and had a look round town for a new dress….realising our freshly painted penguin probably shouldn’t be trying pretty dresses on, we started to head home.
I remembered that a friend of ours has just opened their new little art cafe near home so just had to stop off for a milkshake and a decent coffee. R’Teapot is a gorgeous little hideaway on Bruche Heath Gardens serving the best rocky road I have ever tasted!! i’m talking turkish delight and everything. It’s cosy and welcoming and we’re looking forward to spending more time there over the coming weeks with friends. Congratulations Nat and family for creating such a gem and following your dreams x
It was nice to get out away from home for some time my little girl, we both needed it.
Later on, Harriet and I “popped round” to one of our neighbours for a catch up and for Harriet to run amok with the kids. I did my usual when I start telling a story and leave the house hours later having not even reached the conclusion! Thank you for hosting Andrea and for the vino, the laughter was great medicine 🙂
On Sunday I went to watch my baby sister Shannon, and my lovely friend Nikki, take part in the Great Manchester Run. They were both raising funds for our family and for charities that have helped us since George’s leukaemia diagnosis in January. They both ran through the torrentials to an emotional finish where we were waiting for a big hug and then went for an obligatory cocktail in a nearby bar. They’ve inspired me to do the run next year… I better get training!
I felt like i’ve hardly been at home this weekend, hats off to Daddy for sorting all three kids yesterday while I had a day off. With being out and about and everything going on, I was shocked last night by the amount of hair George has now lost. He’s gone from “Hitler” to “undercut” to “Gollum” to “toupee in a side wind” in the space of 48 hours.
The hair loss doesn’t mean he is getting more sick or anything, in fact he’s got less of the awful disease now than when he had a full head of hair at diagnosis… I think it just constantly reminds me what he’s going through when I look at him, so it has bothered me more than I expected. The only thing that seems to be upsetting him about it is the fact that its in his mouth and eyes all the time. He’s feeling too rough to care what he looks like.
Today has been another emotional roller coaster – and it’s probably more me than Georgie. He hasn’t been constantly crying like Friday, but his mouth ulcers are worse and the steroids are in full effect so is very hungry all the time. He’s just not himself, he’s carried a mini sausage roll round with him all day that he was desperate to eat but just couldn’t chew 🙁 he’s been very quiet, lethargic and telling me his mouth is hurting. He’s been on morphine all day and I had to call the community nurse at lunch time to come out because I was worrying about his breathing. It seemed shallow and he’s got quiet a nasty cough, then I literally thought I had to call an ambulance during one of his coughing fits because he was going blue and seemed like he couldn’t breathe.
He cleared a big mucousy lump and got his breath back and the nurse came not long after. Luckily my friend Nic was here (delivering an order of sausages for the little man) and Laura had popped round too to see if could manage some noodles. The nurse did a thorough check, listened in, checked his pulse etc and felt his breathing was fine. Now I’m questioning my sanity and whether i’m overreacting!
The nurses have said they are going to start making regular visits to check on us and answer any of my questions that I’m currently having to save up until the next hospital visit. I had felt quite isolated being sent home with George initially, I mean on the medical front. We can’t take him into a GPs surgery with a load of sick people and Alder Hey, amazing as it is, is a long way away and a very busy place when you have a concern or question. Once George had started going back to preschool though and he wasn’t suffering too much, I felt ok. It’s now that we’re in the midst of the intense phase, we need the nurses here, they’re such lovely people too, I instantly relax when they’re around.
The lovely Clare dropped a spag bol off earlier which helped immensely, I haven’t had time to do a food shop and haven’t left George’s side all day to cook anything. So after a long day at work, Damo came home to a decent meal! I could’t pass it off as my own unfortunately as my trademark ‘burnt’ wasn’t one of the ingredients. Thanks again Clare x
We had a couple of nice moments when George managed to play with Lego today, he was also very happy to have a snuggle with Daddy when he got home. I managed to capture some of his smiles – he looks like his normal self with a cheeky grin 🙂
Hopefully we’ll get out to water some of our plants in the garden tomorrow, George loves doing that. The guys have been here today installing a garden tap and putting the new fence posts and panels in. It looks ace! Thursday the grass goes down and maybe at weekend we might get the canopy up. We’re really looking forward to getting out there to enjoy it.
Another few days done, we’re not in hospital this week (fingers crossed!) and are just taking each day as it comes. Hoping for a some more comfortable days for George x