Latest hospital visit and upcoming treatment

Georgie on his new trunki (thank you Ria!)
Georgie on his new trunki (thank you Ria!)

On Friday we had a really positive trip to Alder Hey as far as hospital trips have gone so far for George.  First off, the consultant felt that George’s blood test from the Wednesday was great, all his counts were up! so they decided they would hold off doing an unscheduled bone marrow aspiration and just stick to the lumbar puncture for spinal chemotherapy.

Going under general anaesthetic had always been one of the main stresses for George (and us!) as he would fight the gas mask thingy and cry until the anaesthetic took effect…then he’d wake up really distressed and have to stay lay flat (more like be pinned down!) as sitting up within an hour of having it can cause headaches from the chemotherapy.

So, first off, his new port was accessed by the lovely nurses who got it in straight away, he did cry a little but got over it very quickly and carried on playing on the ward.  He was also one of the first children to go to theatre so we didn’t have to wait around for ages whilst nil-by-mouth.

We waited in the inpatients theatre waiting room and George cycled round on a trike whilst waiting to be collected by his anaesthetist.  He chose Daddy to go in with him and Daddy said he fell asleep really peacefully as they could just insert anaesthetic with little fuss through “Barry” (the gripper on the port in his chest).

George just chilling after theatre
George just chilling after theatre

When George came to, he was really chilled and even laughing with the nurses in recovery whilst lying still with no problem.  We went back to 3B Daycare and the only time he became upset was when his feast arrived and he had chicken nuggets instead of chicken strips!?  Bloody King George?!

George savouring his first bite
George savouring his first bite

He soon got over it… and that first mouthful following nil by mouth since the night before looked like it really hit the spot 🙂

Whilst in Daycare I did pick up on a few of the other parents and nurses who looked upset.  It’s awful that this is becoming a familiar situation and I could only assume the worst.  Once home I saw online through some of the new friends we’ve met at Alder Hey that another beautiful young man has gained his wings.  Another family left devastated, another family that we only saw recently with their child smiling in bed on the same ward as George.  I feel sick with sadness for them and for Charlie, a courageous young man who has been taken too soon.

Again, its hit home, the situation can change overnight, we’re appreciating every moment with our family wherever we are.

We’re about to embark on the more intense part of George’s treatment, the doctor outlined what’s going on from the beginning of May.  It’s going to be hours of intravenous chemotherapy and a whole host of other drugs and fluids, it’s the more aggressive phase that we’ve been building up to.  We’re anticipating all the yucky side effects that he’s been experiencing so far are going to be more intense.  We know it’s probably going to be the most testing time but feel lucky to have access to this treatment, to these amazing doctors, a state of the art hospital and it’s all for FREE!!!  just imagine having to deal with all this with a bill at the end!? to think now that one of my main worries in the beginning was about him losing his hair seems ridiculous, but hey, you have some mad thoughts in those first few weeks.

Harriet and George bathtime
Harriet and George bathtime

In other news we found out George has got in at his big brother and sister’s school and starts in September – I completely forgot we were even finding out on Friday because of going to theatre.  That’s going to be whole other ball game with the Macmillan nurses having to visit school and everything… and something that I can’t even comprehend until we’re through the next few months.

We’re very excited about the upcoming St George’s Day toddle and everything appears to be coming together thanks to two lovely ladies who attended Daisy Birthing classes – Helen Dolce-Lund and Sarah Poole, you are absolute stars.  We’re hoping for good weather but being in the North West, it may be that we’ll be rocking our wellies rather than flip flops – we still anticipate a great St George’s day for the bravest George we know!

Next project for Mummy will be getting some birthday plans sorted for our little Harriet, who was also almost forgotten about (bad mummy!) until she asked for a party!? cue me thinking oh my god, when is it?? it’s only 2 weeks away!! still plenty of time….. <frantically Googling girls parties Warrington>

Have a lovely week folks, hope to see a lot of you on Saturday, I can feel myself choking up already xxx

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